| Phyllis
met her husband at the age of 22 and was married four months later. It
is apparent that although he died 23 years ago, she still feels the loss
profoundly today. She was only 38 years old when he died of primary brain
cancer, and she was left alone to raise their two children, June and Paul,
then 14 and 12 years old. Somehow between teaching school and tutoring,
she not only supported them but saw that they got through college, despite
her having been left with few resources.
It is not surprising that when Phyllis began to have acoustic neuroma.
Symptoms in 1989, she did not follow up on recommendations that she have
an MRI. She had a sensation of fullness in her right ear and of dizziness,
but tests she had were inconclusive. After the first year, the dizziness
subsided and she had hearing tests annually. Nine years later there was
a big change in her hearing test and the ENT again advised her to have
an MRI. Phyllis was not alarmed, believing that it could not happen to
her children that she would have a brain tumor. Even when the covering
doctor called her in to review her MRI results while her doctor was on
vacation, she did not anticipate a positive finding. When he told her
she had a 1.0 cm brain tumor and went on to describe her three surgical
options, she was overwhelmed and angry. She resented his insensitivity
and did not know where to turn to share her anxiety. In the end it was
her cousin she turned to. Compounding this, it was the anniversary of
her father's death, which had impacted her profoundly. Phyllis next turned
to the Internet and found ANA USA which sent out their packet of literature,
which she found very helpful. She turned to friends and family for advice
on which NY surgeon to go to, and when several sources in widely divergent
locations identified one surgeon, she felt confident and made an immediate
appointment with him. Surprisingly he advised her to wait and watch, that
is to have periodic MRIs to monitor her tumor's growth, rather than rushing
into surgery. He said that he would do the same type of surgery at this
juncture and with the same level of risk as he would up to 2 cm, and that
there was no knowing if, and at what speed, the tumor would grow. She
began having MRIs every 6 months which showed no growth. She then moved
to annual MRIs, which have still shown no change. Although the doctor
has said that she could move to bi annual MRIs, Phyllis continues to have
annual MRIs to assure herself that any growth is not too great before
she is aware of it. Her only symptom at this point is her one sided hearing
loss for which she has had to make minor adjustments in her life.
Phyllis hag had many other battles to wage in her life and presents an
amazingly positive attitude despite all of it. She was nearly crippled
for years by excruciating migraines as a young mother. This has been a
factor in her decision to "wait and watch" knowing that many
surgical patients struggle with headaches following surgery. More recently
she had a pre cancerous lesion and also required a biopsy of a mass in
her breast. She has also had to make adjustments in her lifestyle to accommodate
her four herniated discs in her back. She treats this with chiropractic
and acupuncture (her daughter is an Acupuncturist) and surprises even
her doctor that she is not crippled with pain. His advise is that she
continue to do whatever she is doing which seems to be serving her so
well.
Phyllis lives in a condominium overlooking the Hudson River with an.
outstanding view of the river, the Manhattan skyline and the George Washington
Bridge. She appreciates it every day, feeling so fortunate to have gotten
where she is in her life despite all of her adversities. She makes the
most of her good friends, of her special relationship with her mother,
her children and grandchild, and she takes nothing for granted. She says
she "doesn't have time to get old." It won't surprise Phyllis
if, by the time she needs it, a less intrusive treatment for acoustic
neuroma has been discovered. |